Back to search results

Organization Information

Curing Cancer Through VHL


Curing Cancer through VHL commits to its name by awarding millions through its research grants program, and in improving awareness, diagnosis, and treatment of von Hippel-Lindau (VHL) disease.  VHLA is dedicated to research, education, and support.

Web Site


Success Story

The VHL gene is in all of us, helping to suppress the growth of tumors. Those with a flaw in this gene are prone to develop tumors throughout their bodies. Researchers are racing to identify and control the pathways that allow tumor growth in VHL and other cancers. Progress provides hope for all of us by Curing Cancer through VHL.

Founded in 1993, the VHL Alliance (VHLA) is the world's leading organization supporting von Hippel-Lindau Syndrome. We are a 501(c)3 nonprofit dedicated to improving the lives and optimizing the treatment of those affected by VHL while aggressively pursuing a cure.

The VHL Alliance is a leading funder of VHL research, committing $2 million to support studies seeking a cure. Since the VHL gene controls the major pipeline that feeds every tumor, its cure brings us closer to curing many other forms of cancer.

Curing Cancer through VHL

Suellen's family always thought that VHL was an eye disease. Her mom was 25 when she was diagnosed, and shortly thereafter, went blind. Today, Suellen has lost her mom and uncle to cancer and her brother, two of her children, and several of her grandchildren have all been diagnosed with VHL. In reality, her entire family has been affected by this dreadful disease. 

Please join them as they continue to raise funds and awareness through VHL and fight to Cure Cancer through VHL. 

Fight Cancer. Support Curing Cancer through VHL!