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Organization Information

Children's Cardiomyopathy Foundation

About

Our hope is that every child affected by this potentially life-threatening heart disease can be cured to live a full and active full life. We're dedicated to finding causes and cures through research, education, and increased awareness and advocacy.

Real Life

“I remember very clearly the day 18 years ago when the cardiologist told me and my husband that the cardiomyopathy that our three-year-old son, Nathan, had was getting worse and there was little chance for recovery. We were scared and felt alone. I told my husband, David, that I wish I knew another person who had a child with cardiomyopathy. It would be incredible to talk to someone whose child was grown and thriving in spite of the diagnosis.  The following year I found the Children’s Cardiomyopathy Foundation (CCF) while searching the internet for answers.

I cannot express how much CCF has changed our lives.  I instantly was connected to other parents who understood how we felt, supported us, and gave us advice.  CCF educated us on the importance of seeing a pediatric cardiologist who specializes in cardiomyopathy. We started taking Nathan to Dr. Jeff Towbin, a medical advisor for CCF and pediatric cardiomyopathy expert. We credit him with saving Nathan’s life at least twice. We can’t thank CCF enough.” - The Davis Family