Success Story

After 3 weeks of flu-like symtoms, we took Luke to the ER on February 15, 2013 where a CT scan revealed a large mass in his brain. Our mystery was solved and our lives were turned upside down! After transferring to Children's Hospital of Philadelphia, Luke had a 9 hour surgery to debulk the tumor on February 22nd. His neurosurgeon was able to remove about 50% of the tumor!

Because of the location and the inability to surgically remove all of it, as well as the type of tumor, this will be a chronic condition for Luke and we are told to expect he will have periods on and off treatment for life. The initial treatment is chemotherapy, which he started in April 2013 and is scheduled to last at least 58 weeks. Our prayer is that he continues to tolerate the chemo well so that he can enjoy time off of treatment.

In addition to chemotherapy, Luke also sees a physical therapist twice a week. His surgeries and extended period of rest during recovery caused muscle fatigue and the loss of muscle tone. He has regained much of it but the effects of the chemotherapy are taking a toll on his muscles and strength as well. Luke has a vision loss.

Luke celebrated his 4th birthday in September. Through all of this Luke remains the silly, easygoing little boy that our family loves. He enjoys playing with his big brother and doting on his little sister and attends preschool twice a week.