AAMDSIF supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide. It also provides research grants.
Real LifeMy Story of Hope by Andrea Rossi Pecor, Aplastic Anemia Survivor
Church Treasurer/Administrator,Yorktown Heights, NY:
In 1980, when I was diagnosed with aplastic anemia, there were virtually no resources available for information or support. There was no internet, no foundation, no bone marrow donor registry, no other patients with whom to commiserate, hardly a book in the library that mentioned aplastic anemia.
I was alone with my diagnosis and, even worse, with my prognosis. I am blessed to have responded five times to courses of ATG and am now enjoying my longest and best remission ever. But what is truly remarkable is that I have been witness to a thirty-year period which has seen such astounding advances in technology that I have seen a post on Marrow Forums by a patient who was diagnosed that afternoon and was already educating herself and receiving support and resources for information and treatment. Patients who would surely have died twenty-five or thirty years ago are now routinely given new life with bone marrow transplants involving protocols and techniques that improve daily.
I am deeply honored to have been involved with the Aplastic Anemia & MDS International Foundation for more than twenty years and know I have had a rare front row seat, as well as a helping hand, in the great work it has done and continues to do to support patients and fund research to find a cure for bone marrow failure diseases.